Founded in May 2016 by cystinosis groups from eight European countries we promise to work fast, so you will see here some more information soon. Curious? You can download our flyer here for a first information.
Contact Please use our address to contact us: Cystinosis Network Europe Beuthener Straße 15 D-40883 Ratingen Germany Tel. +49 2102 69627 Contact
Cystinosis Ireland Cystinosis Foundation UK Dutch Cystinosis Group AIRG France Cystinose France (...)