Wednesday, 21st February 2018
Registrations open 15th January 2018
The development of rare diseases therapies requires the right regulatory, economic and political ecosystem to ensure that investments are made in areas where research would not otherwise be carried out. The current European regulatory framework has brought enormous benefits to the rare disease community in terms of the number of orphan designations and indications, as well as paediatric medicines. (...)
EURORDIS & e-Pag
EURORDIS is an umbrella association, a non-governmental patient-driven alliance of patient organisations representing 779 rare disease patient organisations in 69 countries.
We are the voice of 30 million people affected by rare diseases throughout Europe.