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MetabERN - Education

Share information and documentation with actors involved in the field of hereditary metabolic disorders

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About Us

Dr Nadia Belmatoug

Leader of Workpackage 7 : “Education training and capacity building” and Coordinator of French Reference Centre of Lysosomal disease – Assistance Publique – Hôpitaux de Paris (APHP) - Beaujon Hospital.

Azza Ben Hamida-Khemiri

Project leader of the French Network “Filière G2M (Groupement des Maladies Métaboliques)” of rare metabolic diseases in charge of MetabERN, Europe and International and research.

Margaret Giuliani

Board member of French patients’ association “Vaincre les Maladies Lysosomales” and representative for France in EGA ’European Gaucher Alliance’. She is the patient representative for WP7. In charge of revision of education section of the website for English language.

Abel Poucet

Webmaster of the website “MetabERN: Education, training and Capacity building”.
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