Training dedicated to rare metabolic diseases...
Training dedicated to rare metabolic diseases - Charité Hospital - Germany
Physicians (Annual CME Session on metabolic diseases for physicians)
Dieticians (given by our dietitian and including aspiring dieticians with an interest in hereditary metabolic diseases)
Nurses (participation in special courses provided by pharmaceutical companies)
Associations of patients mostly Phenylketonuria)
the reference centre of rare metabolic disease - Medical Department, Division of Hepatology and Gastroenterology (including Metabolic Diseases) -Charité Hospital
Hospitation for dieticians
Nurses participation in training regarding EET (emergency training, educational)
Therapeutic education for patients: cooking courses, weekend meeting with the whole family
Physicians by invitation to annual CME
In addition there is a project underway during 2018 offering close cooperation for physicians as suggested by the National Plan for Rare diseases in Germany (NAMSE), training those who are interested in dealing with their patients according to guidelines etc."